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April 28, 2008

where shall I start...

We have been going to church every Sunday now....and LOVE this Ward! Everyone is friendly and they are a perfect 'fit' for a Home Ward. Get this....Cameron found a friend he knew from school, which turned out to be the son of James' co-worker, and a few moments later he found out that his Public School Teacher was this boy's Mother, aka: James' Co-Worker's Wife, aka: the Sister who taught last week's RS lesson, that I enjoyed!!! (see, I have never seen his Teacher in person before, because neither she nor I have ever scheduled a meeting since he's such an awesome student and the one time I was in her room...she was absent). We all embraced and Cameron grinned the biggest grin that never left his face all day!

So then, we had the Missionaries over for lunch after church. We made BUrgers and Dogs, pasta salad, seasoned fries and Snicker Salad...they took leftovers home and grinned. They loved that Snicker Salad...so here's the recipe:

SNICKERS® BAR SALAD
1 lg. instant vanilla pudding
8 to 12 oz. Cool Whip®
1 1/2 cups milk
4 to 5 SNICKERS® bars
5 to 6 diced apples
3 to 4 sliced bananas
Use 1 1/2 cups milk to pudding and mix until creamy. Add Cool Whip. Add SNICKERS® (cut in pieces). Add fruit to mixture. Serves 8-12.

Oh, and we and actually planned Cameron's baptism....Sat., May 17th 4pm.

Hmmm...now today I had a lab appointment at 8:20am, so I was up and outta here early to fight traffic. Took myself to breakfast at Baker's Crust, did a little shopping in Target, then headed over to TAPS (Teacher and Parent Store) to locate picture cards, etc...for Autism, so I can help teach Porter more communication skills at home....the Manager (Kerry) was excited to see me, because...she also has 2 children with Autism! We gabbed and she showed me what to buy...$130 later I was out of there with the feeling of excitement. Excited that I am getting things done to help my son! Excited that I met yet ANOTHER parent of a child with Autism! Excited about tomorrow's Pre-IEP meeting!

I came home and spent the rest of the afternoon making a communication binder for Porter incorporating these photos, velcro, word strips...the works! Then, I contacted Wendy Fitch at ABA. (Applied Behavioal Analysis) for a Therapuetic Program for Porter come September....it's going to cost me MULA! They only accept Tri Car, unless our BC/BS of TEXAS works with them....another phone call, left a message with 3 phone numbers for our Insurance Advocate to call me in the am, BEFORE the Pre-IEP (12:30).....WHEW!!!! Are we tired yet?

Oh....and I also ordered myself some Vera Bradley Goodness....all these babies were discounted, because they'll retire this fabric soon. I will have them in my hot little hands sometime next week, when they arrive UPS!!!

ALL in Petal Pink

Out To Lunch $15.00 was $25.00 (using it as a scipture tote- fits everything...wahoo!)
On The Go $37.80 was $63.00 (My purse)
Mini Zip Wallet $15.00 was $25.00 (smaller wallet, less cc's)
Hard Eyeglass Case $10.20 was $17.00 (Need the hard case...too many scratches lenses)
Small Bow Cosmetic $13.20 was $22.00 (lipgloss, tissues, etc...)

Subtotal:
$91.20
Shipping: $7.50
Tax: $4.56
Total: $103.26 (I saved $51.00 before tax/shipping charges!!!!!)

----------

1vbpp 2_vbpp 3_vbpp

4_vbpp 5_vbpp I told James they could just be an early Birthday gift....my bday isn't until July 12th though....Oh Snap! hehehehe! (I'm worth it!)

New Fridge and Freezer are now coming tomorrow, since James cleared space and installed the electrical for them both...wahoo again!

Utility sink and washer and dryer need to get installed in garage this weekend, if James gets everything plumbed in time. He decide to install the leftover kitchen counter as a laundry table for me too, so we can fit the laundry sorter on wheels underneath it. We'll lay down the interlocking foam mats in that area too, so I have something cushy to stand on when doing laundry now. Fans are also in the garage, now just need more lighting installed.

So...see what I meant by the title of this blog post? (Where shall I start?). We are busy, but loving life!

Hope all of you are well. Be good to yourselves and one another, will ya'?

Updates as they come.

Peace Out!

Comments

WOW!
A baptism!
Very cool. I am glad you are liking your ward and all.
And having the missionaries over.
Geez, woman...you just jump into things head first, and do things all PEG-like, 1000 percent gung-ho.
Love that about you.
I can't keep up...but, love that about you.
I miss you.
October is soooo faaaaar awaaaaaay.

Great photos of the kids and Yoda! The Vera stuff is fab and so you.

Glad your happy with going back to church girl.

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Porter's Health

  • AUTISM
    -Porter was officially diagnosed with having Autism- 3/27/08. He is starting on a Gluten Free/Casein Free diet to help heal his gut, and Bio-Medical therapy, plus Speech Therapy, and many, many other 'therapies'.
  • HYPOHIDROTIC ECTODERMAL DYSPLASIA
    -This is one of Porter's diagnoses. Due to this condition, Porter can not sweat to cool his body and if overheated, could spike high fevers, vomit, dehydrate and seizure...and possibly die. Therefore, Porter always needs to be in an air condition/cooled environment. This makes him 'Medically Fragile'. Please help by donating to NFED.
  • IMMUNOGLOBULIN G DEFICIENCY (B-Cell)
    -Another one of Porter's diagnoses. He receives IVIg therapy once per month for the rest of his life...just to stay alive.
  • TOTAL PARENTERAL NUTRITION (TPN)
    -Porter had a Central Line inserted into his chest and recieves TPN nightly from 2 seperate pumps of TPN and Lipids, that his Father, James prepares nightly and puts into a small backpack that Porter wears to bed. This is to help build his immune system and help him grow. This has been our 'liquid gold'. Porter has not needed any hositalization since being on TPN.

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